Monday, October 22, 2012

Working with Lupus-Revisited

Seems that I've been 'revisiting' a few topics as of late, haven't I!  Well, I think it's important.  The way I feel and my thoughts on things have changed.  I've been documenting my thoughts and experiences on this blog since 2007, and that's ample time for thoughts and views and concerns to change.

I've been working part-time for the bank since 2003. This job has meant so much to me over the years.  I've met great people and have made awesome connections. I can say without hesitation that I have met some lifelong friends there, some that have been there for me through thick and thin, and I really don't know what I would do without them. I won't even get into how this job and the health benefits it provides, even to a part time worker, has saved my life.

With all of that said, I seriously need a change of scenery.  I've been in that same department doing the same job since 2003 and it's time that I move on.  Not away from the company if I can help it, however.  All of the long hours spent in class, juggling sleep, studying, and dialysis...they've all paid off.  I'm a college grad, and my diploma says so.  It's time for me to get a job in HR now!

I actually had a job interview last week for an admin coordinator position within the bank. This position encompasses a lot of HR functions. That, coupled with the invaluable administrative experience I would get from such a position is what attracted me to it.  So as for the went okay, but I will admit that I was a little rusty. They asked me what I liked best about my job as well as what I liked the least.  Eek! It's easy to state what you like most, but not so east to state what you like least.  I was caught off guard with that one.  I'm hoping that both of the people that interviewed me, the director and the chief operating officer, could see my eagerness to learn as well as my uplifting spirit in addition the the skill set I bring to the table.

One of the questions related to what I felt might be a possible struggle for me.  Well, I was honest. This would be my first full time job-I've always worked part time.  The COO asked me if I thought my head would be hitting the counter mid-day (he was a funny guy). I countered that by said that I managed to go to school, go to work, and fit homework in between and maintain/achieve Dean's list status, so I didn't foresee that being an issue.

But..what if it IS an issue?

In the position I'm in right now, I work 3 days a week.  If I call in sick, there are hundreds of other people doing the exact same thing that I'm doing right now. In this new position, however, if I call in sick, all of the undone work sits there until I come back..and if I'm away long enough, they'll have to fill the position somehow.  Then, when I return, this job probably won't be there waiting for me anymore. Scary stuff.

But, that said, after my transplant, I truly feel amazing and have rarely gotten sick or felt so exhausted that I didn't want to get out of bed...all things I cannot say about how I felt pre-transplant.

I didn't discuss my condition during the interview.  I discussed this at length with my manager.  She suggested that if they do go ahead and offer me a position, I should mention that I do have appointments from time to time and just want to make sure it's okay...and if, for example, I can come to work early, leave work late, etc. to get work done. Sounds like a good plan, I think.

So I may or may not get this job. Even if I don't, these are still thoughts, fears, etc. I have to think about. I just hope it doesn't get to be too...much. Ya know?

How do you feel?

Thursday, October 11, 2012


I know that I have been MIA for a while-you know how life gets in the way! I haven't had much to report to be honest, but here are a few things.

Back in August, I wrote about my up and coming appointment with the plastic surgeon with regards to my stomach scar. Well, unfortunately, a couple of days before my appointment, the receptionist called me and cancelled it. My appointment with the vascular surgeon with regards to my fistula in early September was also cancelled on me as well.  What the heck! So I've been rescheduled to see the surgeon for my stomach in November, and I just called my coordinator asking for the number to the vascular department so that I can make that appointment.

Now, on to my foot. I went to emerg a couple of weeks back. I saw the ER doctor who told me the exact same thing that the first ER doctor told me (because I brought the report and she just read it back to me pretty much verbatim.  Ugh). Afterwards, she spoke to her colleague who told her to refer me to the fracture clinic.  So, I went home.

I waited and I waited for a call from the fracture clinic-it never came.

In an unrelated manner (of course), I went to see my oncologist.  She noted from reading my file that I was having issues with my foot.  I told her about the fracture clinic appointment debacle.  She stepped away, came back about 4 minutes later, and had an appointment for me. Huh??? How'd she do that?  To be honest, by this time, my foot was already feeling better.  The appointment was made for Friday morning, so when I got home, I called the fracture clinic to try and change the appointment.  I was told that the fracture specialist is only in on Fridays.  Also, the receptionist also told me that they NEVER call people for I was essentially waiting for an appointment that wasn't coming.  Super.

So in the end, I didn't go.  My foot feels better and I hope it stays that way.

I think that's it for now...! :)


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