Tuesday, April 5, 2011

More Waiting

Can stress cause nose bleeds? Because once I managed to toss and turn myself to exhaustion and finally fell asleep last night, I was awoken at around 3am to the feeling of my nose bleeding. Luckily I had a box of tissue near by, but it's always difficult when your nose is bleeding and you can't readily get up because you're attached to a dialysis machine. I managed to get the bleeding to slow down after about 45 minutes. I heard my sister walking by my door so I asked her to grab me some ice. It stopped just long enough for me to wake up to the "END UF" alarm on my dialysis machine. I'm glad that it stopped long enough for me to sleep because I simply cannot sleep with tissue in my nose.

I went to my oncology appointment. I must say that I wasn't happy with the amount of time I had to wait. My appointment time was 1:30. At 2:30, I asked when I'd be seen. I was told that there were still two people in front of me. Huh?? How can I have two people ahead of me when my appointment was supposed to be an hour ago??

Anyhow, long story short, the oncologist, who, by the way, is a lovely lady, told me that more information is needed. So she ordered more blood tests and I will see her back in 3 weeks. Kinda frustrating as I want to know what's going on. She explained to me that some people might have up to 5% protein in the blood/bone marrow...but I happen to have 15%. The x-rays I did were normal. She is concerned that if I do have myeloma but it's the type that does not need to be treated right away (let's say, not for another 10 years or so), having the transplant and taking autoimmune drugs might be detrimental as the immune system helps the body fight off cancer. This could cause problems in the future. She wasn't saying anything specific, she was just giving me a number of scenarios.

What I don't understand is...I'm ALREADY immunosuppressed, so whether I get a transplant or not, I'm always going to be immunosuppressed due to the Lupus. I did ask questions and make statements but I did not think of that. It was obviously a concern for me and I'll have to write that down and take it with me to our next appointment depending, of course, on what she has to say.

So it will be a bit more waiting and wondering for me. I went into that appointment and thought of all the kind and encouraging words that many have shared on my blog. The power of the prayers directed towards me is absolutely incredible. I am amazed and humbled by the love I have and am receiving.

Let's keep it going. If you've read some of my previous posts, you'll have read some of the things that I have gone through...and I'm here to talk (blog-hehe) about it.

This too shall pass...

4 thought(s):

Headstrong said...

So many questions and concerns I wish I could answer and fix... But I CAN keep praying to the One who keeps the answers and makes the fixes. Prayers still coming your way Mz. Flow! Stay strong and beautiful - and hopefully nose bleed free!
Headstrong

Melanie said...

I've been away from Blogger for a while and am just now seeing this. I am so so sorry you are going through this. My thoughts and prayers are with you. Stay strong.

Melanie

Sistergirl said...

I haven't visited you in a while, I am sorry for your "little life interruption" but the Word reminds us that this too will pass.

Pray before you go into your appointments. Pray for guidance, and peace.

Remember: There is nothing impossible for God you have to believe he will give you a break through. He will order your steps in the right way to go.

May I suggest a book I am reading, Life Interrupted by Priscilla Shirer it is so very encouraging for those facing anything that one could consider aggravating.

Mary (practising trouble in D.C.) said...

Hi Miz. I found your blog via a lupus link I found on Twitter.

This may sound weird but it feels encouraging to read about another young woman dealing with lupus and its complications (like wow, there is someone out there who can relate! I've only read one of your blog posts and I wanted to cry.) I don't know if this helps but I developed a bleeding disorder secondary to lupus and it possibly might be worth asking your rheumatologist to refer you to a hematologist for at least a consultation if the nosebleeds persist / you find yourself bruising a lot. Contact me if through my blog (the practising troublemaker) if you'd like more information, I'd be happy to help.

 
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