Monday, September 27, 2010

Where's my call back, dermatology?

You know that feeling when you just feel....weird? That's how I feel. I've been having some strange pain in my right shoulder, my mouth/throat seems dry all the time, my appetite isn't as huge as it usually is...just weird stuff.

I'm just hoping and praying that everything will be ok.

It's been two weeks since my dermatology appointment and the doctor promised me she'd call me back after a week after researching the "strange" white blemishes/spots on my face. Where's my phone call?

This Saturday is my NKE designation exam! Eeep!!

I'm going to get a hair cut on Tuesday. It'll be a bit of a pampering for me...just for all the studying i've been doing. I'm considering getting a massage that day too! Too bad my work benefits don't cover hair cuts. Heh.

Ok, going to study for a bit longer, then I'm going to set up my dialysis machine and get ready for bed.

Oh yeah one more thing- i have the comments on my page set up in such a way that I have to approve them before they appear. It's funny how some spammers try and "sneak" comments on my post in an attempt to advertise on my page. In a previous post when I first mentioned the white spots on my face, some blogger webpage dedicated to "skin whitening" (everything on the page was in asian characters except for the words "skin whitening") commented on that post and said something like "i like your blog, keep blogging". Oh, they like my blog! How nice....hmm, interesting that a SKIN WHITEning blog comments on my post about WHITE SKIN spots.

Nice try.

Saturday, September 18, 2010


So I know I have been absent from my blog. I started school this month and am taking 6 courses..! Much more than I've ever taken at once. One course doesn't have any tests except for 1 final exam at the end of the semester, and two other classes don't have any exams at, just assignments. I can handle those.

I went to see the gastroenterologist earlier this month. Although it has been shown that there is some bleeding in my stomach, she is convinced (like everyone else) that it's Lupus. Yeah, what ABOUT lupus? It's so convenient (for doctors) when someone comes/walks into their clinic and has lupus.

Me: My arm's itchy.
Them: Oh, it's probably the Lupus.

Me: Man, I forgot my watch at home!
Them: it's the lupus I bet.

Me: Can I get a big mac combo with a coke, lots of ice?
Them: Would you like Lupus with that?

Bah! I want answers, not just "well maybe it's Lupus"! Anyhow, the gastroenterologist has told me that her secretary will give me a call to schedule a scope. From past experience, it has been determined that I have a twisty/bendy colon, which therefore results in mucho pain-o for me. So, she said she's only going to do a partial scope, and give me lots of drugs. Hurrah Drugs!

I don't know if I mentioned this on my blog before, but I went to the dermatologist because of a skin problem I'm having. On my face, I have tiny little white dots. They are not raised or bumpy. They are smooth against my face. So, I went to see the dermatologist. She didn't seem to believe it was caused by my medication. She also checked my skin under a black light and determined that it was not vitaligo(sp?), so I'm pretty happy about that. What she DIDN'T know is...well...what it was. She called her one of her colleagues as well as a student doctor who was with her colleague to stare at my face. No dice. So, the dermatologist promised to research my "white spots" and call me back in about a week. I look forward to the phone call.

This wednesday, I'm going to repeat my cross match with my bro. Fun times! Stupid blood tranfusions screwing up my cross matchedness!

Other than that, I have spent most of my time over the past couple of weeks panicking about the NKE I'm writing in just a few weeks. I hope I pass. I've been studying a lot and would be crushed if I did not pass.

Anyhow, I will try to throw in an update here and there, but as you might imagine, I might be a bit too busy to report anything meaningful!

Tuesday, September 7, 2010

Not a happy camper.

My gastroenterology appointment was cancelled by the home hemo secretary and was rescheduled for November 4??! She thought that I would be out of town even though I told her via email 2 weeks ago that I WOULD be in town. But the nurses told her to cancel it as they thought I would not be in town even though I told them verbally. The secretary thought what they were telling them was the most up to date information.

Does it make sense that someone who is dropping their hemoglobin should have to wait and bleed internally for 2 months while they wait for a stupid appointment?? I don't want this low hemoglobin bs to hinder my kidney transplant prospects! I called the gastroenterology office back. After many busy signals, I managed to get through. Unfortunately my appointment time had already been given away!! She told me she had an appointment for tomorrow at 12:45pm, but I'm working tomorrow! Arghh!! The secretary at the gastroenterologist's office said that not everyone for Thursday had confirmed their appointment so she'd call me back...

...She just called me! (From her home!) There has been a cancellation for this thursday but at 2:15 instead of 1:45! Yay! Wow, blog complaining works! Expect more complaints from me more often!

Next complaint to come-why haven't I won the lottery yet???


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Monday, September 6, 2010

Just checking in!

Just wanted to do a quick post to let anyone reading know that I'm ok. I had a relaxing week and it really made me feel better. I have a lot going on for the next month or so.

I have an appointment with Dr. Cino, the gastroenterologist, this coming thursday. Next tuesday, its the dermatologist for the mysterious white (flush with my skin) spots/marks on my face. Then during the last week of September, I have a repeat cross match to do with my brother since I had to get that transfusion a few weeks back. Then, october 2nd, the NKE!

I'm sure I will be a happy camper on October 3 when this hectic 4 weeks are done and over with..!
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