Friday, July 30, 2010

Laptop is back- Still exhausted

I finally got my laptop back today from HP. So far so good- my left mouse button is no longer loose. I'm happy about that, but not so happy that I had to send it back a second time. Ah well, what can I say? We're all human and we all make mistakes sometimes so I guess they just overlooked it the first time.

Other than that, I gotta say, I'm still exhausted. What the heck is wrong with me? Why is my hemoglobin on this downward spiral? I haven't had it checked since it was 70-something, but I'm so tired and I feel rather crappy. I'm tired enough to sleep all the time. In keeping with Dr. Chan's aranesp every 5 days routine, I'll be giving myself another dose tomorrow night. I hate feeling this way. I just want to be able to do what I want to do in terms of working OT when I want to in order to get some extra cash, study for my NKE, etc. Gosh, Dr. Brien, I hope you have some magic solution to my issues when I see you on Tuesday.

Speaking of the NKE, I got a delightful email today from the HRPA. It seems that they have (already) assessed my transcripts and I am eligible to write the NKE in October! Woohoo! Not that there was any doubt, but it's always scary when there is a no nonsense deadline. What if they didn't get to assess my stuff until after the deadline...then I find out that I don't qualify for some reason? Man that would stink! But alas, I am eligible to write and I intend on passing too. Passing with flying colours.

Well, that's all for today. I'm going to study for maybe half an hour, then I'm going to hit the hay. If I wasn't feeling so anemic...I'd probably be out on the town at some club since its caribana weekend.

Le sigh.

Monday, July 26, 2010

Slow Down, Flow!

As I mentioned previously, my hemoglobin is on the decline. Last week I worked a bit of overtime when I probably should have just stayed home and rested. This is the ever existent dilemma for us Lupies. We sometimes feel "fine" and in turn, we overexert ourselves. My dilemma is the fact that I have some extra expenses that have come about due to the fact that I am writing the NKE (National Knowledge Exam) in October (God Willing). With that test, I've spent $250 plus tax to register for the exam and almost $500 on study materials. It is important for me to write and pass this exam.

There are two sittings of the exam, one in May and one in October. After this particular sitting off the exam, there will be a new requirement for exam writers- a university degree. I do not have a university degree as I am in college. That is not to say that I will not persue a degree in the future, but I would like to write this exam while the exam material/content is still relatively fresh in my lupus fogged brain (hehe). I'm pretty confident that the exam will go well as I have already begun the study process. This process involves using the study tools I purchased as well as going over some multiple choice questions as the exam will take on a multiple choice format.

My place of work has hired some new people, so my fear is that my days of having overtime hours available to me essentially anytime I want them will soon be numbered. With all the OT I worked, it made a big difference on my most recent pay cheque. *sigh*...I'll be careful.

I'm going to see the hematologist next week. I'm hoping that he'll be able to give me some information on what's going on with my ever dropping hemoglobin.

That's all for now. Time to set up the ol' dialysis machine and get some shut eye.

Tuesday, July 20, 2010

Tests, Tests, and More Tests

Today was a long day.

I dialyzed last night so that I could take my dialysis bloodwork with me to the hospital. After dropping my bloods off, it was off to the medical imaging department where I got a chest x-ray. The chest x-ray was quick. After that, I knew that I had to do an abdominal ultrasound, so I decided to keep my very stylish hospital gown on and throw my cardigan on top.

The abdominal ultrasound took about 35 minutes. The lady who was doing my ultrasound had another gentleman sitting with her. I cannot remember if he is going to be an ultrasound tech himself, or if he's in med school, etc. Either way, they were both nice. The only problem was the fact that she was talking/explaining things to him, and time was slowly ticking away for the crossmatch/tissue typing tests I had to do with my brother. By the time all was said and done with the ultrasound, it was EXACTLY 10am, the same time as my appointment in bloodwork.

I checked my blackberry and saw a message from my brother. I told him I was on my way. I rushed down there and met my brother. We waited for our tests. He got his done first. I did mine second-I also got and ECG done. I came back out and said goodbye to my bro. One more appointment to go- Transplant Coordinator.

I went up to see the Transplant Coordinator- yep, it was 10:58am and my appointment was supposed to be at 11am. We chatted for about 45 minutes and went through the "all you need to know about kidney transplants" book. Enlightening..!

As tired as I was, I met up with a friend for lunch. I'm glad I did...lunch was delicious, albeit the burger was way too big. But, the service was great.

When I got home, one of my home hemo nurses called me. Why did my hemoglobin drop from two months ago, in the 120's (or 12.0) to 100 (or 10) down to 74 (7.4)??? No wonder why I feel exhausted all the time :( I've been told to increase my aranesp intake to every 5 days instead of every 7 days. We'll see what happens...

Monday, July 19, 2010

A recent "Carrie" moment.

Just a little something that happened on Friday morning when I "thought" my arterial was done bleeding..! :/

Sent from my BlackBerry device

Tuesday, July 6, 2010

Appointment pushed up

I was pretty happy today to get a phone call from the ortho doctor's office. My appointment that was initially to be at the end of October has been changed to late August! I'm pretty happy about that, because to be honest, my knee and hip are killing me right about now.

I also have an appointment with a social worker in early August. If you know anything about transplant stuff, they make you see a social worker first who talks to you about all the stuff that can happen to you if you go through major surgery. I've been through many a major surgery in my life so I don't forsee this being a problem. I know I saw the social worker the last time I got worked up for a transplant, and I'm more educated now than I was then, so it should be good.

In other news, I have to send my laptop back. The left mouse click button isn't working properly-it's very loose. It causes me to double click things when I don't want them to be double clicked. Very annoying. Also, if I leave my computer on long enough (maybe 1-2 hours) and turn it upside down and crack an egg on it...I'd have breakfast. SOOO hot.

I bought my study package for my CHRP test in October. It cost a pretty penny (almost $500). So I hope I pass this test. I've been working a few extra hours here and there at work so that I can make some extra cash to help with the extra expense of paying for this test as well as the study package. I'm also (maybe) going on vacation at the end of August so that's a consideration as well.

Ok that's all for now...:)
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