Tuesday, September 30, 2008

Infection Scare and the Dentist

I woke up this morning to get ready for work. I looked at my venous buttonhole and I wasn't liking what I was seeing. As I mentioned yesterday, my arm felt kind of sore. The band-aid on my buttonhole appeared to have puss on it and the buttonhole looked yellow-ish. Not a good sign.

I decided I needed to skip work and head off to the hospital to get it looked at. The last thing I want or need is an infection. So off to the hospital I went.

I was met by Stella who looked at it. She decided that a blood test and a swab was in order, so she did both. She mentioned that it would be best to not use that buttonhole for the time being. I'd have to agree with her on that one. So, she helped me find a new spot to cannulate in order to establish a new buttonhole site. I was nervous to put the needle in, as I had tried to establish a new site on my own but was unsuccessful. I was able to cannulate the site without any problems.

I hope it's not an infection. I REALLLY don't have time for that. But, I guess the good news is the fact that if it is an infection and I need to give myself antibiotics, I can do it at home while I'm on dialysis, and it doesn't need to be everyday, it can simply be on my dialysis days.

After that, I decided to go upstairs and visit my friend Nicole, who, unfortunately was admitted to the hospital. I haven't seen her since the flare for fashion show last year, but we still correspond regularly via facebook.

I'm sure she was very surprised to see me, but I knew I simply couldn't leave without seeing her first! We had an excellent visit and I can't wait to hang again.

Now, it's time to head to my initial destination for today: work.

I headed back to work for 3 hours. My manager bought the entire team pizza, so I was quite pleased about that to say the least ;-).

No sooner did I enter the office did the 3 hours pass. Now, it's time to go to the dentist to get my chipped tooth filled.

You see, I have a chipped molar. It was chipped a number of years ago when I foolishly decided that it would be a good idea to open a difficult to open bottle of nail polish with my teeth.

The nail polish bottle won.

When I first went to get it filled, I got one of those white fillings that match the colour of your teeth. I also got a good talking to from Dr. Lopardo.

I promise, I'll use plyers next time!!!

Shortly thereafter...the filling popped right out!! After like 2 weeks!

I went back to Dr. Lopardo who decided that he had better replace it with a silver filling. That lasted about 3 years.

Now, it managed to nearly come out. There was still a little piece left, which I subsequently (and accidentally) flossed right out 3 days ago.

I went there, got the needle in my gums, and got filled. Oh man, why didn't I eat before this appointment? I'm sooo hungry but if I eat now I'll likely chew my tongue off. Damnit. I bought chicken and rice from teriyaki experience (next door) and headed home with Mom. I scratched my chin the entire ride home, but since my face was frozen, I couldn't...."reach" the itch. Very annoying! Dr. Lopardo also gave me a full x-ray of my teeth as I need to provide them to an oral surgeon. You see, I have 6 wisdom teeth that haven't come through. 2 of them are way up there and Lopardo says he is unsure if they can be taken out at this point. It'll depend on what things look like when the actual surgeon actually gets in there. My appointment for that is on October 31st.

So, I'm just going to sit here and stare at my rice and chicken/vegetable stir-fry.

....

:(

Monday, September 29, 2008

College, here I come?

I'm not happy with my current school right now.


They're not giving me the program that I want. I'm guessing because I don't have enough courses with them so I don't have enough of a transcript or "record" with them to allow them to transfer me. At the same time, it is not my intention to just take sheep courses to build up a good average so that they'll allow me into the program, as that would be a crazy waste of money.

That being said, on Thursday, (rather spontaneously, I might add), I decided to apply for college. I'm hoping that it won't be difficult for me to get into college and into the course that I want to take.

The options are out of three 3 year programs. 1 is an HR program at Seneca college, while the other 2 are at George brown college, where 1 is the HR program and the other is the HR program with co-op. Ideally, I think the George Brown program with co-op would be best. My guess is that with me working for the bank, I can easily get a co-op placement in my own building doing HR co-op. I won't actually need to worry to much about that until co-op time anyways, which isn't for...well..3 years! But for both of these schools, since I'm starting in January, I'll essentially be in school with no breaks (i.e. no summer off) for the entire time. I'm prepared to do that, God willing.

I've also checked out the disability centres/offices for these colleges online. They both have excellent disability offices that both define kidney disease as one of the disabilities. I'm sure that any other school would too, but it's just nice to actually see "kidney disease" listed there.

Anyhow, I'm kind of leaning more towards George Brown. It's located in the downtown area, whereas Seneca is located more North. If I go to George Brown, it puts me in a central location. This means easy access my hospitals for my appointments, easy access to work if I just hop in the subway, and easy access to getting picked up from school.

Well, I'll keep my fingers crossed!

Sunday, September 28, 2008

Fix One thing, ruin the other

I'm referring to this ski boot that I've been toting around on my right leg for the past 2 months. The fact that the bottom part of my leg was so restricted put extra stress on my already avascular necrose'd knee. My knee's been hurting me since probably 5 or 6 weeks into wearing the cast, on and off.

Whenever I walk around, I can feel that pain in my knee. Well, I shouldn't say whenever I walk around, but sometimes. It's annoying. Simply giving it a rub when I was still wearing the cast seemed to suffice, but I think we're past the rubbing stage. Perhaps I need to start making those treks back to my massage therapist/physiotherapist.

My fistula arm hurts as well. It's sore. I guess being sore is to be expected since I'm shoving needles into my arm at least 5 times a week...but it's still sore. I feel a billion times better being on nocturnal dialysis as my hemoglobin has gone up, I feel more energetic, I feel more motivated...I feel more everything. But...my arm hurts.

If I REALLY wanted to be a big whiner today, I could use this paragraph to complain about how prednisone fixes one thing but ruins the other(s).

Nah. I'm hungry, and if I start doing that I'll be here forever.

Friday, September 26, 2008

DND!

Nope, not do not disturb, but it actually stands for "Do Nothing Day!" I love do nothing day!

I've had a fun filled week thus far with all of my appointments, so I thought I'd seize the oppourtunity too just chill out...and that's exactly what I did! :)

I caught up on my soaps...well, my soap. I only watch one; The Young and the Restless. I also caught up on all of my Judge shows. Haha!

I took the oppourtunity yesterday to look at my options where school is concerned. I re-registered to start school in January, but my current University didn't allow me to transfer to the program that I wanted. That being said I decided to apply to colleges offering the program that I wanted to take. If I get accepted into the January session for any of these colleges, then I'll go there, and perhaps, if I'm not already totally sick of school, go back to university for a year or 2 to get my bachelor. It depends on whether I get a job quickly. If I do, then I'll work full time and perhaps go to school part time. It all depends. Hopefully everything goes well.

I still hate math/finite, if anyone was wondering ;-)

No more (currently) scheduled doctor's appointments for me in the very near future. The next one will be near the end of October, when I'm scheduled to see the transplant doctor. Geez, I've been waiting for 4 years to get a kidney. I want a wonderful and working kidney so I can take off and go on vacation anytime I please without worrying about paying for/planning dialysis!

But, I only want this kidney in God's time.

Wednesday, September 24, 2008

More Appointments!!

Today was another 5 hour shift at home, then a mad dash downtown for a doctor's appointment.

Today it was an appointment with a rhuematologist. I've never met her before as she's located in a hospital that I don't visit regularly. I was confused at first when I received a letter in the mail stating that I had an appointment with a rhuematologist other than the one I've had for years. I honestly thought that I was perhaps getting "passed on" to another doctor!

On an unrelated matter, my actual rheumatologist called me on the phone. When he called, I asked him what gives about this new rheumy. He told me that she was a specialist in osteoporosis. Ahh, I get it.

So off to my appointment I went.

This clinic at Mount Sinai hospital was beautiful. Shockingly beautiful, in fact. It was decorated with pillars that looked very Rome/Greek inspired. The floors were beautiful too. The design of the actual little offices in the clinic was similar to what you might see in a very expensive/high class condominium.

When it comes to my rheumatologist, he knows that I have little to no patience with the fellows (lol...just like I said in the last post). Now, this fellow/doctor was nice, but he simply did not listen. First of all, before being called in to see the doctor, I was given this 2 page document that I had to fill out. It had all of the standard annoying questions (what medications are you on, have you had any surgeries before, etc). I wrote it all down.

When I got called in, I saw that this doctor had the document on the desk. Yet, he proceeded to ask me all of the same questions anyways as if he had no such information period. Why did I spend 15 minutes writing to the point of hand cramps if no one had any interest in reading it anyways? Then whenever I'd tell him something, he'd ask me the exact same question about 5 minutes later.

For example, I told him that I was diagnosed with Lupus in 1996 when I was 14.

*6 minutes later*

"So you were diagnosed with Lupus when?"

Example 2:

Me: I went to a hospital near my house, my blood pressure was taken, and it was sky high, like 220+ over 120+. They did all sorts of blood tests, and upon seeing the results, they told myself and my family that I needed to go to sick kid's hospital right away.

*10 minutes later*

"So when you went to the first hospital, what did they do there?"

AAHAFWITUEOIGTEJIL!!!!!

Anyhow, I just remained at tolerant as possible until the actual doctor who I was meant to see came in. In the end, she decided that it would be a good idea to confer with my nephrologist with the ideas she had about possible medications she wanted me to take. I was happy with that, and I suppose I'll hear back from her or my nephrologist soon.

Oh, and before my appointment I stopped for some maki sushi. Mmm!

Tuesday, September 23, 2008

The Progesterone Verdict is In!

I like my gynecologist. Her name is Dr. Thomas and she's at Mount Sinai hospital. She's amazing in many ways. She's nice, she's sweet, she's gentle, and she's hilarious. I also had the pleasure of meeting another gynecologist today who was working with Dr. Thomas. His name is Dr. Laskin. He's totally amazing too. I spoke to him for a while before both he and Dr. Thomas spoke to me.

Usually, when it comes to me seeing Doctors, I hate seeing the "first" doctor. I don't like being asked a bunch of questions, often questions that I've answered a billion times and are written down in the chart in that doctor's hands. Totally different with Dr. Laskin. He made me feel completely at ease with his witty and humorous comments. Super cool guy. We discussed the various things that have occurred in my life in the past 3 years, and he also gave me some information on 2 different types of birth control. One was oral, and one was to tbe inserted into the vaginal area and would stay there for 5 years. 5 years?? Eeep! Dr. Laskin, however, seemed to really promote that vaginal one. He also assured me that he didn't work for the company that makes that particular contraceptive, nor did he receive a commission if he wrote a prescription for one! Haha

When it was pap time I told him how much I hated them. He told me that he doesn't think he's met anyone who's said "Hmm, I loved my pap! Can I have another please??" Haha, I laughed. He's too funny. At this point, Dr. Laskin left and got Dr. Thomas while I changed. They both came in after a few minutes after Dr. Laskin briefed Dr. Thomas and all we discussed.

I'm sure I broke a couple of Dr. Thomas' fingers during my pap. Who invented paps, anyways? Who decided that it'd be a good idea to use cold metal vices to.....ah nevermind.

Strangely enough, even after the pap, I still like Dr. Laskin. He even asked if I still liked him and I said yes. "I don't!" said Dr. Thomas. We all had a good chuckle.

After all was said and done, Dr. Thomas suggested that I use medroxyprogesterone acetate to help regulate my periods. Medroxyprogesterone is a progesterone that is derived from soybeans. It reduces the effects of estrogen on tissues such as the endometrium (lining of the uterus) and the breast, according to healthyontario.com. I'm to take this medication for 10 days straight, at which point my period should start. In the future, I may switch to the 5 year contraceptive that Dr. Laskin spoke about. We'll see.

So that was my visit to Mount Sinai. Don't forget to get your paps every year, ladies!

Monday, September 22, 2008

Lupus Brain Fog??...nah, just forgetfulness

I worked today from 8am to 1pm. I usually wor 9am to 2pm, but I started at 8am today so that I could leave early. I had to catch the train after work and head downtown to my appointment. I was scheduled to see my nephrologist today for a general check up.

I waited and waited for the stupid bus outside of my building for almost half an hour. After the bus came, I caught the train pretty quickly and got to the hospital by 1:55. Not bad...5 minutes to spare.

I went to go check in for my appointment. "You have an appointment today? Your name isn't on the list..."

Oh no. Don't tell me that my appointment isn't today and I mucked up. After a few phone calls were made, I later found out that my appointment was actually supposed to be October 2 and not today! Geez, what a moron I am!

Just at that moment, my nephrologist walked out. I begged him to see me today so I didn't have to come back. Well, I didn't exactly beg...I just asked. Since Dr. Richardson is, like, super wicked cool, he totally saw me today. Thankfully there had been a cancellation. Wee!

I busy-ed myself with a cup of chicken soup while I waited to be called. Only 10 minutes after my last bite, I got called in. Weee!

Dr. Richardson was more than pleased with my results. He said that I'm dialyzing well. My blood work is great and he's very pleased that my hemoglobin is holding strong. I am also happy about this. He said that I look great. I'm glad I look great because I feel great. If how I feel inside is reflected on how I look on the outside...well..that's just super!

I have to make an appointment myself to see Dr. Richardson again as the home hemo secretary wasn't there to do it because...well... it technically wasn't a home hemo clinic appointment day!

I took the bus home. Boy do I hate rush hour. I waited for the bus for almost 30 minutes. 30 minutes for my bus is bizarre as it is supposed to come like less than every 10 minutes. Anyhow, I managed to get a seat thankfully. But the whole ride was just ruined by these girls standing in front of me. They must be in high school. They kept complaining and cursing at anyone who touched or brushed them on the bus. I know I wouldn't be impressed, crowded bus or no crowded bus, if someone plowed into me. But this definitely wasn't the case. It was just a lot of people in a crowded place, so some bodily contact did occur unintentionally. One guy dropped his bus transfer behind his seat (somehow??). I was one seat away from him, and beside him was a young boy, maybe 12 years old. One of the girls exclaimed "WHY IS EVERYONE LOOKING AT THE MAN? WHY DON'T THEY TRY AND HELP HIM INSTEAD OF JUST STARING?? *kisses teeth* GEEZ, THESE PEOPLE HAVE NO MANNERS!!!"

The very idea of her discussing anything to do with manners is simply ludicrious and quite frankly, comical.

Anyhow, I got up from my seat much earlier than I usually would for my stop as I didn't want to sit there any longer.

Was I that obnixious when I was in high school?

Sunday, September 21, 2008

Welcome Back, Carolyn!

My friend Carolyn went off to Switzerland to work and has been gone for a few months. She came back to Canada on Thursday, so we all got together today to get some brunch! It was very nice seeing her again, as well as getting together with all of the girls.

After that, my Mom, Dad, sister and I went to a family friend's house for dinner. He's a close family friend who works in the healthcare field. He has helped me a lot when it comes to my Lupus and dialysis. He is extremely knowledgable and super kind.

WOW! What a palace he lives in. He bought the empty lot and designed the house himself from the ground up. Every aspect of that house had his own input into it.

The food was great and so was the company. I hope to do things like that more in the future....just get out, share food, friendship and company with others. I spent my entire day doing that...and loved every minute of it.

Saturday, September 20, 2008

FFFF- Flare for Fashion Filming!

So yesterday, after my insanely long doctor's appointment, I headed out to get my hair done. I did this because today is the day that we meet and do the filming of the personal stories for the 'Flare for Fashion' fashion show.

My mom and I set off at around 9am as we were to meet at Diana's house at 10am (Diana is the president of Flare for Fashion). Her house is a bit far from us, and my mom doesn't like driving on the highway, so we took the main roads. It took us about 30-35 minutes to get there.

Diana's house is gorgeous! I met all of the other models and we all got along quite naturally. It definitely must have something to do with that bond we all have. The highway was actually closed this weekend, so the flim crew was a few minutes late. When they did arrive, I volunteered myself to go first to film.

I got interviewed by a lady named Caroline. She was very nice. I managed to hold it together and not cry, which is good. I left the waterworks to the others as I'm sure at least one other person cried while telling their personal stories. When I saw this aspect of this aspect of the show last year, I myself was brought to tears just from hearing their stories.

I talked about when I was diagnosed, having kidney failure, being on dialysis, and how all of this changed my life.

It was great to meet the other models and Diana is a great host. Hehehe.

The Flare for Fashion show is on 15th of October. For more information, check out the Flare for Fashion website at http://www.flareforfashion.ca/

Friday, September 19, 2008

Release Me From This Shackle!

I spent the better half of today at the fracture clinic. I'm sorry to say (or rather, sorry to reiterate) but that clinic has got to be the busiest and also the most unorganized clinic there is. The clinic opens at 8:00am and my appointment was at 8:15am. By 10:30am, I still hadn't been seen!

I went to ask how long this would take. When they looked through the files and such, I was told that there were still 6 people in front of me. Hmm, let's consider this for a moment.

The clinic opens at 8am. I had been waiting for an hour and 15 minutes for my appointment. So you mean to tell me that there were THAT many people scheduled between 8am and 815 for one doctor? Ridiculous! I asked them if they could send me for my x-ray now as I knew the doctor would want one. They told me it wasn't necessary as the doctor didn't ask for one. Ok.

After another 45 min or so had passed when I was finally called. I saw the doctor who looked at my past x-ray. He looked at my foot and seemed satisfied that I was good to go without the cast. However, like in all cases, it was necessary for me to see Dr. Lau, the big cheese doctor.

He came in about 15 minutes later to look at my foot. He also seemed satisfied. He asked the first doctor if I had gotten an x-ray today and he responded in the negative. "I'd like to get an x-ray...just to make sure".

I could feel my blood boil as I had asked the people outside to put me through to do an x-ray while I was waiting as the doctor would want one. I went outside and spoke to the guy who seemed to be in charge of this operation.

"are you luc?" (as in 'looch', short for luciano) I asked him.

"how long is it going to take for me to get an x-ray done?"

"Ooo," he said, "well, there are about 10 people in front of you waiting for an x-ray.

In cometh the twitching of the eye.

"Listen, looch. I came here over an hour ago and told THAT guy *points* to put me through to do an x-ray and he assured me that the doctor didn't want one. Now I have to wait at the back of the line when I could have gotten this done already? My appointment was at 8:15 and I'm still here!!"

He sincerely looked like he sympathized with my situation. "Why would he do that? It says right here that a repeat x-ray would be needed". Luciano gestured towards my open chart, which was open to the page showing my last appointment's notes. It clearly said a repeat x-ray would be needed.

I went to look for a seat in the ludicrously full clinic. Before I could find a seat, I was called in to do the x-ray. Good job, looch. Good job.

In the span of about 30 minutes, I got the x-ray done, got seen by Dr. Lau again, and was given the go ahead to go without my cast. He asked me to come back on October 31st for another follow up appointment...at 9:30am

If this appointment was for 8:15 and I'm just leaving and it's almost 12pm, how long is a 9:30 appointment gonna be with patients getting pushed back?

...yeah...I'll be there.

Monday, September 15, 2008

"It's Not the Proper Order of Things"

Parents aren't supposed to bury their kids, kids are supposed to bury their parents.

I didn't know her personally. Her parents and my parents knew each other. Her sister and my sister went to school together. She and I have mutual friends in the Nigerian community. I didn't know her personally, but I was still compelled to go and pay my last respects.

She was born in 1981, just 1 year before me. She was doing her masters at McMaster University. After that, she planned to go for her doctorate. She had very high hopes and large dreams, just like we all should. But the hopes and dreams of this world that she had were not meant to be.

She was at home by herself. I'm not sure of the exact circumstances, but what I do know is that she fell, likely tripped, and hit her head on something, likely a dresser or the edge of the bed, when she fell. She was alone. Because she wasn't discovered until later, perhaps an hour or two, it was too late.

I was overwhelmed when I got to the funeral home. When I sit down to have my hair braided, how do I know it's not the last time I'll do this? Second last time? When I wake up in the morning, how do I know whether or not this will be the last time I brush my teeth? Wear this shirt? Watch the food channel?

It made me think of myself. I'm very happy for my life and I'm glad I'm here. What I do know is that my parents, on more than one occasion, probably sat there, wondering if they'd ever have a conversation with me again. I was a car with my dad's best friend. We talked about the time I had that seizure at Sick Children's hospital. He said that my Mom held it together as well as one could expect. My Dad however, wasn't as strong. He was sitting on the floor in the hallway of the hospital. Crying. My dad's best friend tried to console him past his own tears. I was seizing for an extremely long time. Hours even. But I still manage to be here. And I managed to escape that episode without any brain damage, the very next fear my doctors had when they realized that I was going to make it out of this episode alive.

All of these thoughts shot through my mind quickly. It then brought me back to funeral. The family. The father and his 2 other daughters were there. The mother wasn't there. My Dad told me that in our culture, the mother doesn't attend the funeral if her daughter should pass. I didn't ask for an explanation. I didn't want one at that time...I was still slightly numb.

I wonder how people go on after that. What do you do with her bedroom? Do you pack her things up and put them away? Do you leave it the way it is? What if you decide to move out of your house? Would you even want to? That was the last home she knew...would you...COULD you do it?

When I got home, I thought about my dialysis neighbour...he was a dialysis patient who used to sit in the chair next to me when I was still on the unit. He died. He got an infection that his already compromised and weak immune system couldn't handle. He was only in his 50s.

I've been luckier than lucky in this life. I know that God is on my side, and I appreciate every breath I take. I appreciate every step I take. I appreciate every word I speak. I appreciate my life.

Saturday, September 13, 2008

The Dentist...then Cake Decorating??

After dropping off some blood at the lab with my Mom, my sister and I headed off to see my dentist...a trip that was way, WAY past due...over two years past due in fact.

The dentist visit went just as I suspected. It was long, my mouth hurt from keeping it open for an hour, and it hurt even more getting my teeth cleaned. I admit...I'm not much of a flosser. It's tedious work. And no, it's not just me being lazy, but it's my teeth. My teeth are extremely tightly spaced together. Even when I buy the floss labelled "for tightly spaced teeth", my tightly spaced teeth still tears the floss to shreads...often causing floss to get stuck in my teeth, meaning I have to floss the floss out of my teeth, only to get the first piece of floss out but a second piece stuck in there....you see where I'm going with this, right?

Anyhow, as usual, I was semi-lectured on my lack of flossing and paid for it with some painful deep cleaning (aka scraping). Usually when I get the deep cleaning I get some freezing in my gums, but not this time. Usually they just give it to me but I didn't recognize this hygenist. Maybe I should have asked. Anyhow, at the end of that appointment, I found out that one of the fillings filling in a chipped molars had kinda come off. I have to go back and get it fixed.

After that, I came home, ate, then went out with my Mother. We went to the cake store so I could buy a PROPER cake box (the one that I was sold last week wasn't the right size even though the cashier is the one who got it for me when I showed her the cake board I needed a box for). Then we zipped off to Canadian tire so that I could buy a mini hacksaw so that I could cut dowels for the cake I'd be stacking. After buying that stuff, we headed home so I could work on my cake.

I wasn't totally pleased with my cake. The fondant didn't go on the cake nicely like I wanted it to. My house is much too humid and it made my fondant sweat, also making it sticky. The finished product looks ok, but I'd have been happier if it didn't sweat so much. It actually sweat so much that it made my black edible marker pen stop working properly.

Here are 2 pictures of my cake. The "vines" are chocolate fondant and the leaves are gum paste.







Now, it's time to fill up my bicarts, grab a bite to eat, then get some well earned shut eye after a busy day. My mom still has a lot of food to cook, vegetables to cut, fruits to arrange...poor mom!

Friday, September 12, 2008

What is the Value of Life?

My Dad came home from work in the evening the other day. I was setting up my dialysis machine when he walked in. He told me that a family friend's daughter had died. She was home alone when she fell down the stairs and hit her head. Since nobody was home, she wasn't discovered until hours later...by then, it was too late.

I didn't know her personally, but I couldn't get it off of my mind. It just surprised me. It just brings forth how precious life is. Here I am, a girl with Lupus and ESRD. People often look at me with their sad eyes, shaking their heads in pity, as if my life is some sort of eventual death sentence. Yet, I'm still here...and there are tons of people who woke up this morning, perfectly fine...not knowing that would be the last time they'd be getting up from that bed, brushing their teeth, taking that shower...

There have been a number of crimes and murders in my city. Just a 2 minute drive from my house, a teenager at a bus stop was shot dead right across the street from a high school. That same week, a man was shot on the highway in a moving vehicle. It appears that the shooter and the victim were in the same vehicle. It is unclear whether he jumped out of the passenger side of the car or if he was pushed out. It doesn't really matter. He was murdered. In 2 separate and unrelated attacks, two women were stabbed to death in their apartments. Both assailants are still on the loose.

By no means do I live in a "bad" neighbourhood, but the amount of crime is astounding. It's scary. It just reminds me how much I value my life, and I wish others valued not only their lives, but the lives of others too. These people who commit these crimes...do they even begin to really understand the severity of ending someone's life? What can someone do that is SO bad that would cause you to want to end their life? Make fun of you? Say something bad about you? "Diss" your girl/boyfriend? Decide they don't or no longer want to be your girl/boyfriend? What kind of fatal mistake can one make that will ultimately seal their fate?

I'm here wth all of these health issues, yet I live on, much after others who are, medically, perfectly healthy. I value my life, and I value the lives of others. I wish these people out there committing these crimes did too.

Saturday, September 6, 2008

Boysenberry! Where are youuu!!

I'm still waiting on my kitchenaid mixer. I ordered it on August 29...and according to the website it was just shipped today! I hope it comes soon as I gotta get to baking, and I can bake TONS of cake in that super huge mixing bowl.

I just came back from McCalls (cake decorating store/school) and purchased some things that I need for a cake I have to bake. Since this is a cake that'll be going to church, I changed my idea a bit for the cake. I decided that I'd like to make a square sheet cake as the base, then make an open book cake on top. The book cake on top will be (surprise, surprise) a bible. Not a bad idea for a cake going to a church, eh? The cake will, as my previous idea, still have leaves and branches and stuff going up the cake...that will not change. I'm going to make the leaves with a spiffy new leaf cutter that I bought so that it'll have time to dry. Then, I'll dust them later...possibly tomorrow. Then they'll be done so that all I have to do is make and decorate the cakes, then apply the decorations!

Since I want the leaves to have a curved appearance so that they look more natural, I'll have to dry them on a curved surface and not on a flat one. The box that I get my dialyzers in has something that looks like a large egg carton that separates the layers. This cardboard carton is just perfect for drying my leaves! So these dialyzer separater things have a use other than separating the layers of my dialyzers! :)

Anyhow, I haven't much to report today, so I'm gonna head off, grab some grub, then make some leaves!

Wednesday, September 3, 2008

Yay for Wellness!

When I got into the office yesterday morning, I took half an hour to sort through the plethora of emails in my inbox. 95% of them were my co-workers requesting shift trades/ shift switches with other people. There was one email, however, that was particularly interesting!

I guess my building has seen that many other office buildings have either gyms, exercise programs, etc, and are now considering doing the same thing! The email was requesting that we go online and fill out a survey with our opinions on the idea.

If this proposal does actually go through, wellness and fitness classes will be offered. Some of these classes include things like tai chi, yoga, pilates, yoga-pilates, body flow...even boot camp! I'm not sure that I'd be participating in the bootcamp stuff, but all of the other stuff sounds great! How wonderful would it be to have a teacher-run workout program to participate in either before my shift or afterwards?

I think it's a great step and a great idea. I can't wait for this plan to be implemented (as I can't imagine anyone being strongly opposed to it to the point where the business decides not to go ahead with it).

I'll continue with updates as they happen! :)

Tuesday, September 2, 2008

Back To Work, Back to Doctor's Appointments

My first day back to work since vacation time was today. My shift went by relatively quickly which was nice. I felt like I could have worked the entire day...but if I did I'm sure I'd have come home, crashed, and wouldn't wake up again until maybe 9pm...not a good idea when it comes to trying to fall asleep again. But, I'm glad to be back...glad to be out of the house.

When I returned from vacation, I came home to many messages informing me of doctor's appointments. I have to see my gyno, I have to see Dr. Lau regarding my fracture, I have an appointment to see another rheumatologist at Mount Sinai (I suppose it's in the absence of Dr. Fortin), and I also have an appointment next month to see the transplant nephrologist.

The secretary from the transplant nephrologist's office called me the other day. When we spoke she said to me "Oh, we're just about ready to put you on the transplant list, but we want you to see Dr. Cole first".

Just about ready to put me on the list? So where, exactly, "have I been" for the past 5 months? Strange. They've been asking me to submit bloodwork ASAP, and asking me to do this test, and that test...just to tell me that months later they're "just about ready" to put me on the transplant list? Weird indeed. I just hope that it's as I think and that I'll be put on the transplant list according to when I started dialysis.

It's almost 9pm now, and I have things do to and need to be done so that I can connect myself by 11pm. All of my bicarts are empty and I need to fill them all up. I'm so tired/lazy though...but it needs to get done.

And now I'm sitting here watching Beverly Hills 90210 the new generation. A real useful way to spend my time, eh?
 
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